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M9480455.TXT
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1994-08-20
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Document 0455
DOCN M9480455
TI The prevalence of informal caregiving to persons with AIDS in the United
States: caregiver characteristics and their implications.
DT 9410
AU Turner HA; Catania JA; Gagnon J; Department of Sociology, University of
New Hampshire, Durham; 03824.
SO Soc Sci Med. 1994 Jun;38(11):1543-52. Unique Identifier : AIDSLINE
MED/94310483
AB Based on U.S. national (N = 2673) and central cities (N = 8263)
probability samples, this paper: (1) presents estimates of the
proportion of the United States population that has provided informal
care to persons with AIDS; (2) identifies socio-demographic
characteristics of 'typical' AIDS caregivers in the U.S.; and (3)
discusses social, economic and health-related implications of informal
caregiving to persons with AIDS. Results indicate that 5.0% of all
adults age 18-75 living within central cities and 3.2% of the entire
adult U.S. population have provided care to a friend, relative or lover
with AIDS. Although caregivers are distributed throughout different age
and ethnic groups, the majority of caregivers are younger (< 40 years)
and white. Males, gay and bisexual men in particular are
over-represented among central cities caregivers. Data on the types of
caregiving tasks performed show that 64.4% of all caregivers within
central cities perform domestic types of caregiving tasks, while 27.7%
are involved in personal care of AIDS patients. Caregivers are more
likely than non-caregivers to have been tested for HIV, and among the
tested, caregivers are more likely to have tested positive. While
informal caregiving reduces costs to the formal medical sector, costs to
the caregivers themselves should be considered. Physical and emotional
stress, as well as reduced opportunity for social and economic
development, represent potential outcomes of caregiving.
Socio-demographic characteristics of AIDS caregivers, such as their
typically young age, suggest that these caregivers may be at particular
risk for detrimental consequences.
DE Acquired Immunodeficiency Syndrome/EPIDEMIOLOGY/*NURSING Activities of
Daily Living Adolescence Adult Aged AIDS Serodiagnosis Bisexuality
Caregivers/PSYCHOLOGY/*STATISTICS & NUMER DATA *Cost of Illness Data
Collection Female Health Care Costs Health Status Home
Nursing/STATISTICS & NUMER DATA/*UTILIZATION Homosexuality Human Male
Middle Age Prevalence Sampling Studies Socioeconomic Factors Stress,
Psychological/EPIDEMIOLOGY/ETIOLOGY Support, U.S. Gov't, P.H.S. United
States/EPIDEMIOLOGY Urban Health Workload JOURNAL ARTICLE
SOURCE: National Library of Medicine. NOTICE: This material may be
protected by Copyright Law (Title 17, U.S.Code).